Friday, 30 May 2014

So far I have raised £220.00 thank you so much for your support everyone, here is my go fund me page. I will be skydiving on the 10th August. For those that don't know about Connor, here's a brief description. In March 2013 my son Connor (now 4 years old) got diagnosed with Duchenne Muscular Dystrophy :( Duchenne is a progressive muscle wasting disease that will rapidly take over his body. He already has a small wheel chair for long distances, he will be in a power wheel chair full time by age 10, most boys dont live to see age 20. Along the way he will have many other complications such as week bones, fibrosis, he will require a ventilator to be able to breath, decreased heart function leading to heart failure and pneumonia. He will loose every function that we all take for granted, like feeding ourselves, going to the toilet and even stratching our own noses. I can't just sit back and watch him decline and let Duchenne take over him. I have to do what I can in the hope that we might secure treatment, but even better, find cure for Connor. In doing this, we hope to not only benefit Connor, but all other boys too, who are unlucky enough to be diagnosed with this heartbreaking disease. We started up a campaign called Caring for Connor Campaign you can find us on facebook we also set up a website www.caring4connor.com. As you can imagine our lives have changed dramatically and totally been turned upside down. I have always wanted to do something outrageous but never had a good enough reason until now. I am trying to raise awareness and funds for my son. Please click the link to see our story. Thank you for taking the time to look at my profile and supporting us in our fight against Duchenne Muscular Dystrophy. This young lady done one for us last year.  We also have an event Sunday find all the details here 



Just a quick one to remind everyone that this little man still has no idea about Duchenne, so please try and be a little discrete. Although this may be hard with older children around. The less that's said to them the better. We have approached Connor about 'his poorly muscles' but he insists they are fine. How do you tell a 4 year old about this? to us, he's just way too young xx www.caring4connor.com



Monday, 12 May 2014

Hi my name is Wayne. In March 2013 my son Connor (now 4 years old) got diagnosed with Duchenne Muscular Dystrophy :( Duchenne is a progessive muscle wasting disease that will rapidly take over his body. He already has a small wheel chair for long distances, he will be in a power wheel chair full time by age 10, most boys dont live to see age 20. Along the way he will have many other complications such as week bones, fibrosis, he will require a ventilator to be able to breath, decreased heart function leading to heart failure and pneumonia. He will loose every function that we all take for granted, like feeding ourselves, going to the toilet and even stratching our own noses. I can't just sit back and watch him decline and let Duchenne take over him. I have to do what I can in the hope that we might secure treatment, but even better, find cure for Connor. In doing this, we hope to not only benefit Connor, but all other boys too, who are unlucky enough to be diagnosed with this heartbreaking disease. We started up a campaign called Caring for Connor Campaign you can find us on facebook we also set up a website www.caring4connor.com. As you can imagine our lives have changed dramatically, I have always wanted to do something outragious but never had a good enough reason until now. I am trying to raise awareness and funds for my son. Please click the link to see our story. Thank you for taking the time to look at my profile and supporting us in our fight against Duchenne Muscular Dystrophy.
http://www.gofundme.com/93ovus

Wayne, Connors Dad
   http://www.gofundme.com/93ovus