Emotional week

Quite an emotional week for a lot of parents this week with schools breaking up and children growing older, moving up a year and to new schools. 

Connor is leaving year one at still only 5 years old, one of the littlest in the year. One more year at primary school, next year it'll be junior school. With the normal progression rate of #duchenne he will lose his ability to walk by the time he leaves his junior school plus many other things. 

Looking through old photos and thinking why does he have to grow up!!  This is his 20 week scan photo and as soon as we saw it in the hospital we knew he loved us. Can you see you the ♡? :) 

We love this little man so much, we CANNOT let this disease win!! 

If you would like to help out in any way please just tell your friends and family about the Caring for Connor Campaign lets raise some much needed awareness for Connor and please show your support but popping over to Connor's facebook page and give him a like facebook.com/caringforconnorcampaign

Thank you xx

Tremendous couple of weeks for Caring for Connor

What a tremendous couple of weeks been. We've had our 2nd annual fun day at Jungle Jims plus dog show, Canterbury Angling competition, Swimathon at Hartsdown, Leg waxing, Walk2work and tomorrows Clairvoyance night at Lesters.

We truly are so thankful to everyone who is behind us on this mission of #duchenne. Joining us at events, buying merchandise, liking and sharing on social media, organising their own fundraisers etc. The kindness of people is so over whelming and it's really does give us great hope that we can beat this horrible disease and give Connor the best possible life he deserves.

If you've not heard of our story please take a couple of minutes to watch and share. It's a video we made not long after Connor's diagnosis in 2013. Help us spread the word of what duchenne does to these children.

Awareness is a key part in finding a treatment or cure and at the moment we have nothing, just hope.

Xxx

Connor's Sports Day 

So proud of this little guy yesterday. It was Connor's sport day and a hard day for us to watch. Seeing your child next to other children, you can see the struggles, differences and weaknesses more. The school and his classmates were fantastic as they all agreed because of Connor's poorly muscles that he should have a bit of a head start. This meant instead of him coming last by quite a lot, he finished around the same time as the others and from where we were standing he won the sack race. Although we believe it's not about the winning, it's the taking part that really counts. This isn't a great photo as it shows us that his stance is starting to change more like a boy with ‪#‎duchenne‬. His belly is starting to pop out and his body is changing shape in order to support himself as his muscles waste away more. On the bright side look at his little face and cheeky grin getting ready to run 

smile emoticon

 He loves running, climbing and doing what all children love. We can't let duchenne take this away from him. ‪#‎fightharder‬ ‪#‎cureduchenne‬

If you would like to find out more about Connor's please pop over to Connor's facebook page

facebook.com/caringforconnorcampaign

              Assault Course Challenge for Caring for Connor

Connor has no idea about the rare muscle wasting disease that is attacking his body Called Duchenne Muscular Dystrophy (and for now his parents would like to keep it that way).  He has a tendency to fall down rather too often, tires easily and finds stairs a challenge. 

The terrible statistical prognosis is that he will be in a power wheelchair, fulltime by the age of 10 and no longer be with us by age 20.
His out-of-the-blue diagnosis has been extraordinarily devastating for his parents, even more so because both Connor and little brother Kye, were the long-awaited arrivals following challenging IVF treatment.

At first it was a case of grieving, trying to get their heads around it. The dreams and visions of Connor’s life had been taken away. We all needed to do something positive and as a family came up with the Caring for Connor Campaign. 

On 5 April 2013, Caring for Connor Campaign was launched on Facebook. Almost every day the Campaign gains new supporters who have joined forces with the                                                family to raise awareness of, and ultimately find a cure for DMD. The goal is to                                           give Connor the best possible chance, through a fighting fund, for the latest treatment.

 On Saturday, October 3rd, 11am, Fowlmead Country Park Sandwich Road, Deal, Kent CT14 0BF. There will be an Assault Course including 19 specially designed obstacles, tunnels, balance beams, the rope walk, water jumps and tyre wall. We’ve secured 18 places so if your interested in joining us or making a Caring for Connor team of 6 please send us a message. Come say hi to Connor and his family and watch Connor's dad take on the assault course. 

Any queries please message us through Connor’s facebook page… https://www.facebook.com/caringforconnorcampaign or www.caring4connor.com or via email caring4connor@gmail.com or if you would like to make a donation please pop over to Connor's go fund me me page at http://www.gofundme.com/caring4connor

Thank you for taking the time to visit Connors page x please feel free to share.