Caring for Connor walk

Right in the middle of this photo is our Connor, for whom we are all fighting and what our efforts yesterday and every other day are about. 

They don't know it yet but these children may not grow older together. Yesterday however, they had a long caring for Connor walk on our gorgeous coastline and here they are chillin' Westgate has never looked so lovely and blue. Let's hope there friendships last as Connor is going to need to close friends in the future. 

If you would like to support us in away big or small please get in touch via caring4connor@gmail.com or visit www.caring4connor.com of pop over to Connors face book page at facebook.com/caringforconnorcampaign

Thank you x

Abseil, Caring for Connor

A Caring for Connor team of supporters will be abseiling down Leas Cliff in Folkestone on Sunday the 14th June at 2pm. Could you be up for the challenge? Get directions 

The cost will be £12 plus a minimum of £75 in sponsorship. A just giving page can be set up for you to share via social media.

Come join us for a fab day out with a fab bunch of people and get you adrenaline pumping ;) x

Please get in contact if your interested caring4connor@gmail.com or pop over to connor website at www.caring4connor.com and have a look at our events page.

Here are a few pics from last abseil. 

 

Caring for Connor Walk

Sunday the 7th June at West Bay Cafe (on the prom) Sea Road, Westgate on Sea, Kent CT8 8QZ.

The Caring for Connor Campaign are hosting there annual walk for Connor since the Caring for Connor Campaign started. It's an opportunity for all Connor's family, friends & supporters to get together. 

Join us, help raise awareness for Connor & duchenne also possibly some funds. Enjoy a gentle stroll that the whole family can take part in including the family dog along our lovely coastline. 

Connor loves dressing up as superheroes, so dressing up is optional even if its just the kids although adults are welcome too.

We will walk to The Sunken Gardens and will be joined with a few characters for photo opportunities, a drink and a chance to buy a raffle ticket or two. Then gently stroll back for the raffle draw and collect your children's certificates.

It would be great if sponsorship was collected but again optional. Please let us know if you require a sponsor form and we'll email it to you.

Last year we were joined by 150+ people and we're hoping to top it again this year. Please spread the word and invite your friends, family and work colleagues. To find out more of what we are up to please visit www.caring4connor.com or connect with us on facebook at facebook.com/caringforconnorcampaign.

Two Year Duchenne Anniversary

The 28th March 2013 is a day we will never forget. We received the earth shattering news that our first born son Connor, conceived through long awaited IVF treatment had Duchenne Muscular Dystrophy. We sat in Green banks children’s centre, Garlinge with a Pediatrician and a physio therapist unaware of the news we were about to receive.

bit.ly/TwoYearDuchenneAnniversary

Please feel free to share, the more awareness the better for ‪#‎duchenne‬ xx

Fight against Duchenne Muscular Dystrophy

As most of you know we had to have ivf to have both our sons. Our eldest son Connor who is now five is slowing dying. It had nothing to do with ivf its not inherited. He has a progressive muscle wasting disease called‪#‎Duchenne‬ Muscular Dystrophy, this could happen to any family. It is rare muscle wasting disease thats attacking his body. He has a tendency to fall down rather too often, tires easily and finds stairs a challenge along with other things.The terrible statistical prognosis is that he will be in a power wheelchair, full time by the age of 10 and no longer be with us by age 20. We didn't know what to do so as a family we set up Caring for Connor Campaign to raise awareness and funds to hopefully find and fund cure for this cruel vile disease.

 I am doing a 135 foot abseil for Connor tomorrow. We are asking you if you can to make a donation to help us in our mission to keep our son. A massive THANK YOU to every one that has donated and continued to support us. Some people might not be able to contribute but you can show your support by sharing and telling every one about our mission. Thank you again Wayne, Connors dad xx You can also text CFCC50 your amount to 70070.https://www.justgiving.com/WayneOlsen

World Rare Disease Day

Something is happening on Sat 28th February, it's World Rare Disease Day (WRDD). We would like everyone to help create awareness. There are over 6000 different rare diseases worldwide. Duchenne Muscular Dystrophy is a rare disease. Its a progressive muscle wasting disease, taking every ability from children, NO treatments, NO cure & 
100% fatal. We are asking you to link for DMD. Linking two or more fingers. Be it your own, with someone else or ten others. Take a picture and share it with us. We need you to use hash tags (#)    Help us spread the word & create curiosity. Duchenne needs to end now. Help Save Our Children! But we need everyone on board, Especially YOU.
Upload your pics to.
https://www.facebook.com/caringforconnorcampaign https://twitter.com/caringforconnor
http://instagram.com/caringforconnorcampaign/
Thank you all xx

Rare Disease Day 

Rare Disease Day is on the 28th of February. Duchenne (DMD) is a rare disease. We would like everyone to help create awareness on this day. We are asking you to link for DMD. Linking two or more fingers be it you own, with someone else or ten others. 

Take a picture and share it with us

.https://www.facebook.com/caringforconnorcampaign

https://twitter.com/caringforconnor

http://instagram.com/caringforconnorcampaign/

We need you to use hash tags #Link4DMD #Fatal. 

Help us spread the word & create curiosity, Duchenne needs to end and now, save our children!

Everyone has fingers & phones, its free and so easy to do. So lets do it!! :) xx