World Rare Disease Day

Something is happening on Sat 28th February, it's World Rare Disease Day (WRDD). We would like everyone to help create awareness. There are over 6000 different rare diseases worldwide. Duchenne Muscular Dystrophy is a rare disease. Its a progressive muscle wasting disease, taking every ability from children, NO treatments, NO cure & 
100% fatal. We are asking you to link for DMD. Linking two or more fingers. Be it your own, with someone else or ten others. Take a picture and share it with us. We need you to use hash tags (#)    Help us spread the word & create curiosity. Duchenne needs to end now. Help Save Our Children! But we need everyone on board, Especially YOU.
Upload your pics to.
https://www.facebook.com/caringforconnorcampaign https://twitter.com/caringforconnor
http://instagram.com/caringforconnorcampaign/
Thank you all xx

Rare Disease Day 

Rare Disease Day is on the 28th of February. Duchenne (DMD) is a rare disease. We would like everyone to help create awareness on this day. We are asking you to link for DMD. Linking two or more fingers be it you own, with someone else or ten others. 

Take a picture and share it with us

.https://www.facebook.com/caringforconnorcampaign

https://twitter.com/caringforconnor

http://instagram.com/caringforconnorcampaign/

We need you to use hash tags #Link4DMD #Fatal. 

Help us spread the word & create curiosity, Duchenne needs to end and now, save our children!

Everyone has fingers & phones, its free and so easy to do. So lets do it!! :) xx

A bit from the Isle of Thanet Gazette. Keep an eye out for Fridays paper xx | Thanet Gazette

Thanet groups and fundraisers celebrated at Heart of the Community awards night | Thanet Gazette

Say yes to #translarna drug to be fully funded on the nhs for #duchenne. 
https://www.facebook.com/video.php?v=816435035083563&set=vb.497180663675670&type=2&theater

Colour For Connor Day 
The ongoing Caring for Connor Campaign is sponsoring its second-annual “Colour For Connor Day,” a positive call-of-action to bring awareness to the rare form of MD known as Duchenne Muscular Dystrophy (DMD). The day-long event takes place on Friday, November 28, 2014.

Young Connor Olsen was diagnosed with the devastating Duchenne in 2013, and today, his family continues to make it their mission to raise awareness and funds for him and all boys with the illness, via Facebook (https://www.facebook.com/caringforconnorcampaign).

The 2014 “Colour For Connor Day” invites all to wear bright colours to help amplify the discussion about Duchenne Muscular Dystrophy. Even those who work at or attend schools that mandate a particularly dress code or uniform might add a brightly coloured tie or socks to acknowledge the occasion.

The event is truly all about raising awareness, while continuing efforts to raise funds for Connor and the other young children affected by DMD. Participants are encouraged to post photos, as well as “signing up” on a proprietary Facebook page for the event: search “Colour for Connor Day.” https://www.facebook.com/events/1554764004743178/

ABOUT
Connor’s parents Georgina and Wayne Olsen live in Westgate-on-Sea in Kent. The family recently welcomed a second son, Kye. Connor was diagnosed with Duchenne Muscular Dystrophy (DMD) in March 2013. The current prognosis for this muscle wasting disease calls for Connor to be in a wheelchair full time by age 10, with the potential for his tragic death around 20 years old.

Although there is no cure for this cruel disease, treatment options continue to make progress. The Caring for Connor Campaign hope to not only benefit Connor, but all other boys who are unlucky enough to be diagnosed with this heartbreaking disease.

For more information, please visit:
www.caring4connor.com

We received an absolutely amazing message the other week..... Guess who has been asked to turn on Herne Bay's Christmas lights :) xx 

www.facebook.com/caringforconnorcampaign 

www.caring4connor.com

 

Connors dad from the Caring for Connor Campaign, took to the sky to raise funds and awareness for Duchenne Muscular Dystrophy. Why not do what you can do and get involved and support someone with Duchenne Muscular Dystrophy today or learn and spread the word. Thank you all for watching, get liking & sharing :) We need your help. If you would like to help out in any way big or small please get in touch with us at facebook.com/caringforconnorcampaign

or www.caring4connor.com thanks for watching :) please hit like and subscribe.https://www.youtube.com/channel/UC4bc5mVsIJVdIIRPHLULe2Q/videos

Thank you to Davy Randle for the use of his cover vision for the Caring for Connor campaigns video, of  Anywhere For You John Martin - Anywhere For You

here is his facebook https://www.facebook.com/DavyMusic