No Treatment 100% fatal
I will be skydiving on the 10th August. For those that don't know about Connor, here's a brief description. In March 2013 my son Connor (now 4 years old) got diagnosed with Duchenne Muscular Dystrophy :( Duchenne is a progressive muscle wasting disease that will rapidly take over his body. He already has a small wheel chair for long distances, he will be in a power wheel chair full time by age 10, most boys dont live to see age 20. Along the way he will have many other complications such as week bones, fibrosis, he will require a ventilator to be able to breath, decreased heart function leading to heart failure and pneumonia. He will loose every function that we all take for granted, like feeding ourselves, going to the toilet and even stratching our own noses. I can't just sit back and watch him decline and let Duchenne take over him. I have to do what I can in the hope that we might secure treatment, but even better, find cure for Connor. In doing this, we hope to not only benefit Connor, but all other boys too, who are unlucky enough to be diagnosed with this heartbreaking disease. We started up a campaign called Caring for Connor Campaign you can find us on facebook we also set up a website www.caring4connor.com. As you can imagine our lives have changed dramatically and totally been turned upside down. I have always wanted to do something outrageous but never had a good enough reason until now. I am trying to raise awareness and funds for my son. Please click the link to see our story. Thank you for taking the time to look at my profile and supporting us in our fight against Duchenne Muscular Dystrophy.
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