Have a look at this AMAZING skate board up for auction for Connor. If you want to put in a bid please comment on the ORIGINAL post a link underlined below in order to be in with a chance. Thank you so much to Gavin Obsession Tattoostudio Clarke xx
"GET INVOLVED EVERYONE.Ever since Vee from Skin Kitchen told me about this brave little fella I have wanted to help so come all and click on photo below and bid.
Please also visit Caring for Connor Campaign and like the page.If you don't want to bid then please like and share in case someone on your friends list wants to bid (Any other donations are welcome, just get them to me and I will get them to Connors family"
Our £10,000 cheque has finally reached Halo Therapeutics. Just wanted to share the email we received this afternoon. Thank you to everyone, without all of you, this wouldn't have been possible. Come on Halo!!! xx Dear Georgina and Wayne,Thank you very much for your generous support. We received your cheque over the weekend and are putting the funds to immediate use. As you may know, we have encouraging early results from the first patients who participated in the HT-100 trial and we’re focused now on treating these and other boys for longer periods and generating additional safety and efficacy data. There is a tremendous amount to do to ensure that we keep moving the HT-100 development program as rapidly as possible, and we’re approaching this work with renewed enthusiasm based on the data we’ve seen to date.
Your generous support, along with that of other like-minded individuals and organizations, makes possible each step forward in the HT-100 for DMD program. We look forward to updating you on the program’s progress, and of course you should always feel free to contact me directly if you have any questions.
With gratitude, on behalf of the entire HT-100 team and Akashi
please share Thank you
A massive massive thank you to Keith at The Black Cat Club/ The Westcoast Bar, Dan at Live Music Matters and everyone else who has helped & organised, of what's going to be an amazing day & night......A day of live music and fun for all the family to raise money for The Caring for Connor Campaign. It's only £5 for an all day wristband and we will be kicking off at 11:30 in the morning. Come and join the party and bring the whole family!
We have Superhero's, face painting, raffles, poetry, circus skills and live music from some of Kent's Finest unsigned acts!
Featuring Sarah Lucy Dole and Starlane, Craig Francis, spyplane Erin Scarlett, Siobhan McFadyen, The Boxing Octopus, Flame Pilots, Colonel Mustard, Gentlemen of Few, Jaeg, The Final Third, Wildfowl, Morning Departure, POLAR BEACH , Skaciety and Hey Maggie
https://www.facebook.com/events/777324305647164/?fref=ts
Thank you very much to Herne Bay Youth U16 Football Club for getting in touch and supporting The Caring for Connor Campaign and our fight against Duchenne Muscular Dystrophy www.caing4connor.com. Congratulations on your win yesterday, hopefully it'll be a great season for you. They've very kindly offered Connor a HBYFC kit and he can't wait xx and thanks to evolution branded clothing ltd for doing a fantastic job on the tshirts.http://www.evolutionbcl.co.uk/http://www.evodance.co.uk/.
Info on Duchenne Muscular Dystrophy: Is the most common fatal genetic disorder diagnosed during early childhood, affecting approximately 1 out of every 3,500 boys and 20,000 babies born each year. DMD is a recessive X-linked form of muscular dystrophy, affecting around 1 in 3,600 boys, which results in muscle degeneration and eventual death. The disorder is caused by a mutation in the dystrophin gene, located on the human X chromosome, which codes for the protein dystrophin, an important structural component within muscle tissue that provides structural stability. While both sexes can carry the mutation, females rarely exhibit signs of the disease. Symptoms usually appear in male children before age 6 and may be visible in early infancy. Even though symptoms do not appear until early infancy, laboratory testing can identify children who carry the active mutation at birth. Progressive proximal muscle weakness of the legs and pelvis associated with a loss of muscle mass is observed first. Eventually this weakness spreads to the arms, neck, and other areas. Early signs may include enlargement of calf and deltoid muscles, low endurance, and difficulties in standing unaided or inability to ascend staircases. As the condition progresses, muscle tissue experiences wasting and is eventually replaced by fat and fibrotic tissue (fibrosis). By age 10, braces may be required to aid in walking but most patients are wheelchair dependent by age 12. Later symptoms may include abnormal bone development that lead to skeletal deformities, including curvature of the spine. Due to progressive deterioration of muscle, loss of movement occurs, eventually leading to paralysis. Intellectual impairment may or may not be present but if present, does not progressively worsen as the child ages. The average life expectancy for patients afflicted with Duchenne Muscular Dystrophy is around 25. If you would like to support us in our fight please get in touch via facebook at thttps://www.facebook.com/caringforconnorcampaign or www.caring4connor.com Thank you
Connor got his 24 hour heart monitoring machine today. He's doing great so far just a bit un comfy, thinking a restless night is on the cards. Some boys with Duchenne Muscular Dystrophy loose there lives around the age of 10 years due to heart failure, it is a muscle too. Fingers and toes crossed for good results xx If you would like to keep up to date with Connor please pop over to his facebook page https://www.facebook.com/caringforconnorcampaign or pop over to his website www.caring4connor.com :)
