Showing posts with label Inspiration. Show all posts
Showing posts with label Inspiration. Show all posts

Wednesday, 8 October 2014

Absolutely amazing day today at the run or dye 5k. With great people and so many laughs. 18 runners in total although we did loose a few amongst the thousands. Thank you so much guys & girls  xxx Just a few pictures of the day.








 







Saturday, 27 September 2014


Have a look at this AMAZING skate board up for auction for Connor. If you want to put in a bid please comment on the ORIGINAL post a link underlined below in order to be in with a chance. Thank you so much to Gavin Obsession Tattoostudio Clarke xx

"GET INVOLVED EVERYONE.
Ever since Vee from Skin Kitchen told me about this brave little fella I have wanted to help so come all and click on photo below and bid.
Please also visit Caring for Connor Campaign and like the page.
If you don't want to bid then please like and share in case someone on your friends list wants to bid (Any other donations are welcome, just get them to me and I will get them to Connors family"

Wednesday, 24 September 2014

Our £10,000 cheque has finally reached Halo Therapeutics. Just wanted to share the email we received this afternoon. Thank you to everyone, without all of you, this wouldn't have been possible. Come on Halo!!!  xx 

Dear Georgina and Wayne,

Thank you very much for your generous support. We received your cheque over the weekend and are putting the funds to immediate use. As you may know, we have encouraging early results from the first patients who participated in the HT-100 trial and we’re focused now on treating these and other boys for longer periods and generating additional safety and efficacy data. There is a tremendous amount to do to ensure that we keep moving the HT-100 development program as rapidly as possible, and we’re approaching this work with renewed enthusiasm based on the data we’ve seen to date.

Your generous support, along with that of other like-minded individuals and organizations, makes possible each step forward in the HT-100 for DMD program. We look forward to updating you on the program’s progress, and of course you should always feel free to contact me directly if you have any questions.
With gratitude, on behalf of the entire HT-100 team and Akashi
please share Thank you 

Tuesday, 23 September 2014



A massive massive thank you to Keith at The Black Cat Club/ The Westcoast Bar, Dan at Live Music Matters and everyone else who has helped & organised, of what's going to be an amazing day & night......

A day of live music and fun for all the family to raise money for The Caring for Connor Campaign. It's only £5 for an all day wristband and we will be kicking off at 11:30 in the morning. Come and join the party and bring the whole family!

We have Superhero's, face painting, raffles, poetry, circus skills and live music from some of Kent's Finest unsigned acts!

Featuring Sarah Lucy Dole and Starlane, Craig Francisspyplane Erin Scarlett, Siobhan McFadyen, The Boxing Octopus, Flame Pilots, Colonel MustardGentlemen of Few, Jaeg, The Final ThirdWildfowlMorning DeparturePOLAR BEACH , Skaciety and Hey Maggie

https://www.facebook.com/events/777324305647164/?fref=ts