Connor has no idea about the rare muscle wasting disease that is attacking his body Called Duchenne Muscular Dystrophy (and for now his parents would like to keep it that way). He has a tendency to fall down rather too often, tires easily and finds stairs a challenge.
The terrible statistical prognosis is that he will be in a power wheelchair, fulltime by the age of 10 and no longer be with us by age 20.
His out-of-the-blue diagnosis has been extraordinarily devastating for his parents, even more so because both Connor and little brother Kye, were the long-awaited arrivals following challenging IVF treatment.
At first it was a case of grieving, trying to get their heads around it. The dreams and visions of Connor’s life had been taken away. We all needed to do something positive and as a family came up with the Caring for Connor Campaign.
On 5 April 2013, Caring for Connor Campaign was launched on Facebook. Almost every day the Campaign gains new supporters who have joined forces with the family to raise awareness of, and ultimately find a cure for DMD. The goal is to give Connor the best possible chance, through a fighting fund, for the latest treatment.
On Saturday, October 3rd, 11am, Fowlmead Country Park Sandwich Road, Deal, Kent CT14 0BF. There will be an Assault Course including 19 specially designed obstacles, tunnels, balance beams, the rope walk, water jumps and tyre wall. We’ve secured 18 places so if your interested in joining us or making a Caring for Connor team of 6 please send us a message. Come say hi to Connor and his family and watch Connor's dad take on the assault course.